Have been told to keep away from exercises that strain me, ie heavy weights. Do you have any info or recommendations about this? I have been factual with him and told him worst case scenario is he is done with both and have pushed him to see the positives of exploring other things to do. I am a competitive cyclist, neither the Cardio or my Doctor said I should not be racing bikes anymore, does that sound reasonable to you, my doc did say to monitor the aortic root size yearly. Unfortunatly that`s pretty much all the advice i`ve been given so far, so little out there on what i can actively do and what i can`t. Required fields are marked *. Thats about as specific as he got. My cardiologist is not concerned. Sbp. Thoughts. I asked her about surgery. This content can also be viewed on the site it originates from. On Monday the 13th, I had my annual echo. We use surveillance (you mention every 6 months) because usually problems with progressive enlargement of the aorta or with the valve itself can be picked up before there is any lasting harm. I am riding my 3 rd anual Belgian Waffle Ride today. Interestingly, bicuspid valves are one of the most common forms of heart valve disease. They all underwent aortic valve replacement. I cant think like a nurse where hey is concerned. We expect the current generation tissue valve to last at least 12-15 years before problems. will need careful consideration by your physicians who know all of the pertinent details. I had an echo because of a scuba diving accident and was discovered to have a BAV (no PFO). I had an exercise tolerance test recently and they seemed happy with my results so fingers crossed thats a good indication I can carry on training hard! When the aorta is enlarged in the setting of BAV, there are a couple possibilities: the valve needs to be replacedor it doesnt: Valve repair. My doctor says i use losartan for decrease my blood presure. CT or MRI may be more accurate. Since Im not close to good medical care, are their specific things that I will start to notice if my heart valve is causing a problem? So it is very possible to continue athletic activities after surgery. Post 2 years and Ive yet to get back to my high level of racing fitness and wanted to see what should be expected. I inderstand that my resistance training will likely be severely curtailed from this point forward, but severe restrictions on my endurance training will be a very difficult pill to swallow. Great article! Almost half of BAV subjects develop different degrees of valvular dysfunction during their lifetime. my age is 20 right now Or is the real risk related to further deterioration of the heart in the longer term that would be picked up by 6 monthly monitoring, which may indicate the need for surgery but not an immediate risk of dying suddenly? Thank you for answering these questions. Before that, I had never seen a cardiologist ever. Then, Arnold's pulmonary valve was switched to the aortic position. Also twice a week I try to do 40-minute workouts like planks, pushups and so on (with my bodyweight). Aortic valve repair is sometimes possible. I like to practice MTB and running competitively in local races. The notion is to reduce the number of cycles of heart beat x high blood pressure. Bethesda Conference reports), even though there is no certain link between sports and the aorta enlargement. I had a scan done recently and they picked up a what they called a mild dilation of the aortic root at 47mm, ascending aorta 34mm, no other issues. I asked her when I get my valve replaced(it will have to be replaced sometime in the future) will they repair my aneurysm and to my surprise she said no. Many of us are not familiar with the many types and facets of the martial arts. Vanity Fair may earn a portion of sales from products that are purchased through our site as part of our Affiliate Partnerships with retailers. Dear Dr Creswell you seem to be such a kind cardiac surgeon to make yourself available in answering questions. The increased stroke volume and cardiac output may cause . He wants to be normal. 1. Coarctation of the aorta is a narrowing that may produce an increase in the blood pressure in the upper extremities. Bicuspid aortic valve (BAV) disease is the most common congenital heart defect, as it affects 1.3% of the adult general population . In the 2.5 years from surgery, I returned back to riding within the first 3 months and later back to longer, decent training pace rides and racing but feel like I have lost my top end mojo. During pregnancy. My cardiologist has told me that, based on how my heart sounds, he doesnt think hell ever have to operate on me. Just still unsure however if my bioprosthetic valve affects my cross country running times. The fusion (sticking together) of the valve leaflets causes abnormal valve opening and closing. Bicuspid aortic valve. The singer co-founded the Womens Heart Alliance, which works to raise awareness and funds research to fight womens heart disease. Perhaps other readers will comment. Everyones symptoms are different but I felt compelled to share mine. In addition to being patients, there are many celebrities who, like you, parent a child with CHD as well. The doctor said she would see if she could talk about his case with the surgical panel but she said even if he did have surgery he couldnt have a career in sports??? For athletes with mechanical heart valves, the most important consideration is usually about potential bodily injury while taking blood thinning medications. There has been a slight increase in the measurements over the last several years, but I am still below the threshold which would require surgical intervention. Very likely an operation will be needed at some point in the future. These operations can sometimes enjoy the benefits of each of the operations you mentioned.and avoid done of the down sides. . I am now 60. Elite triathletes and heart problems My biggest concern is whether I will be able to return to my previous level of physical activity and level of fitness. This is an area where second opinions may be helpful in sorting out whats safe. I am 18 now, and I am interested in weight lifting. In Jan 2016 My son was seen by the cardiologist and had some changes on his echo and the cardiologist said hey had mild progression of the aortic regurgitation( moderate to severe) with preserved LV function. The bicuspid aortic valve opens and closes abnormally, and can result in leaking of the valve. My son is 16 years old and his story is very similar to many I read on your blog. Your doctor will be in the best position to know all of the relevant information and offer sound advice. Ive a BAV with the fusion being between my right coronary and non-coronary leaflets. 2020 Update: Arnold Gets An Aortic Valve Re-Replacement! There are many surgical options depending upon the particular circumstances. Do you think the jiu-jitsu (e.g. In the process of how I had the slow waltz with MG UNTIL DIAGnosed, will be ready in 3 weeks. Fast forward, he is now 13 and we went yesterday for his yearly. We are trying to work out a way for her to continue to play. Thanks very much for this Dr, it is really helpful to get someone elses opinion on the subject and Ill definitely raise those points with my cardiologist next time we meet. I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. Just a short info for whomever may read, I searched for Tims name and I found this page: Seek different pediatric cardiologist/hospital (we have not seen a cardiologist yet)? Together, you should be able to settle on what sports activities will be safe based on those facts. Congenital heart issues affect approximately 40,000 people born each year in the U.S. and are one of the most common types of birth defects. To me, cardiologists are not sports people and air on being absolutely over cautious. This blog helped me a lot in my panic days, it put me at ease when I was worrying to much, just to see and to know your enemy and to realize that you are not alone is great help. Yes, I am aware of the work by Dr. Dietz. I am playing basketball I am doing 100m and 200m and swimming . At this appointment she advised that there has been some progression in his regurgitation and she did a stress test on him which did not show any concerns and hey was a ble to do it for almost 12 minutes. If labeling my fitness level I wouldnt use the term athlete, but I used to work out pretty vigorously 5 days a week until about 8 months ago (weights, medium endurance cardio, no longer distance running than 5 miles, interspersed with HIIT). My problem is a perpetual fear and worry about having this diagnosis and having to someday undergo open heart surgery. Im hoping you can help with some guidance. Will I need surgery? I am a 36 yo male who was first diagnosed with BAV at the age of 17. There, Lucci learned that she had a 90 percent blockage in the main artery of her heart and a 70 percent blockage in another, and needed emergency surgery. Catch up on the years best movies, whether in theaters or now streaming at home. Kinda like a marathon but it will take me at least 9 hours. Guidelines specifically for athletes come from the Proceedings of the 36th Bethesda Conference in 2005. (I am on a low dose beta blocker) Your web site and the links have much good information. Bicuspid aortic valve: A bicuspid aortic valve only has two leaflets, increasing the risk of circulatory problems and heart conditions. I realize that appointment availability for medical specialistsin your case, the pediatric cardiologistcan be tight. According to reports (and my new cardiologist), this congenital variation . Weight-lifting is only one example, but others would include golf, bowling, shooting, etc. John Ritter - Actor - passed away due to undiagnosed CHD at age 55. Exercise and sports are usually safe if there is mild aortic root enlargement but no other heart or vascular problems. My son is a baseball player, so that is good. This can cause the valve to malfunction and prevent blood from flowing correctly from the . Its conceivable that an echocardiogram a week afterwards could be abnormal simply because of the race. There have been reports of lingering effects (decreased function of the left or right ventricles) for several days after marathon runs. I was just curious if there any way to know if my valve is affecting my times at all? Notify me of follow-up comments by email. What is the average life span of a tissue valve? Your sons doctors are undoubtedly experts at pediatric patients. To save nice heart the best would be doing nothing (! Also I seemed to get quite sweaty the following hours after a hard training session. Thanks for my previous response a few weeks ago. Tetyana. 1) What kind of sports are recommend to me according to my situation? How much exercise is too much for someone with a functional BAV? Maybe a genewho knows. Also I lift weights . Measurements of aortic diameter can be made with echocardiogram. I will keep you posted. The studies on Irbesartan for Marfans(I dont have Marfans) are showing some positive outcomes; and. Consensus guidelines suggest that athletes with mild aortic regurgitation and no other heart problems can participate fully in their sports. But, while doing my cardio stress test they discovered that I have a Bicuspid Aortic Valve. The HAART 200 is an innovative device that helps in the repair of BAV, allowing patients to avoid aortic valve replacement. Replacement of the aortic valve with either a cryopreserved human homograft (the aortic valve from a human cadaver) or with the patients own pulmonary valve results in the least obstruction to blood flow. One young man's complications from a bicuspid aortic valve were life-threatening, but perseverance and expert care helped him make it through. Athletes will ask when they can return to their sports. While I do expect to have a replacement done later in life, the repair was the best decision I could have made. This is an unfortunate situation for the athlete patient because the consensus guidelines do not yet recommend operation, yet advise against strenuous sports activities. Thanks. I feel like my HR takes longer to warm up and recovery after races is longer. A CT scan made the diagnosis. He loves sports and is wanting to do more and more. She was originally under the impression she felt the way she did simply because she was exhausted. Thank you very much for writing such a thorough and well informed article. Mild to moderate ai The surgery involved a replacement heart valve made from a transplanted tissue sourced from his pulmonic valve. Over time, these patients need to be monitored for continued proper function of both the pulmonary valve (that was borrowed) and the new substitute for the pulmonary valve. My resting HR is 60-70 BP 110-70, according to doctors have no tissue problems, never had hypertension and was told that I was born with weak threskupid valve. A normal aortic valve looks like the Mercedes logo, a circle broken up by three lines that meet in the middle. I was also advised that it is really the static weight-lifting that could pose a problem. Im obviously quite anxious that Ill drop death! I was concerned about his cough last weekend so I was assessing his lungs with my stethoscope when I heard a very pronounced diastolic murmur at his 3rd ICS. Thank you so much for your explanations, Im 30 years old with BAV 2 instead of 3 leaflets since birth, doctors recommended me to have Echocardiography test each year and so. March 10, 2016 at 1:50 pm. 2k erg test. The value of CT/MRI comes when a millimeter or two makes a difference in treatment, restrictions, surgery, etc. Unanswered questions include: Can a bioprosthetic valve wear out more quickly than expected? Willie Moses Again, there are ACC/AHA guidelines for when operation is needed: Sometimes more than one indication for operation may be present, so there is the additional guideline for patients who need operation for aortic stenosis or regurgitation: I know from discussion with athletes over the past few years that there are differences of opinion among cardiologists and heart surgeons about these guidelines. There, they detected I had a bicuspid aortic valve." This meant the valve which controls the flow of blood from the heart's left-ventricle chamber to the main artery had only two flaps instead . Thank you for your ideas and I apologize for my gramma errors (English is not my first language). Details of my condition: I wouldnt hesitate to register your concern with your sons doctor about waiting a few weeks. I met an old guy once after a run and he described me very well his running experience; he said when I accelerate, Im the only one to know. when I discussed this with my Dr. he reassured me that its not my heart causing it. For those with moderate aortic stenosis, the guidelines suggest restricting activities. In some cases a particular arrhythmia that is responsible for your feelings of palpitations or light-headedness could be identified.and options for treatment could be presented. California Governor and movie star of films including The Terminator and The Predator, Arnold Schwarzenegger marked the 10-year anniversary of his heart surgery at USCs Health Science Campus. Thank you for your expert opinion. Am I crazy? Dr. Larry, very helpful content. To much info to much detail so much information and advice. Dietz?) Anyway, it has slowed to 1 mm per year, and, via email, Dr. Dietz has suggested we may consider a switch to 300 mg Libersartan? I see in this blog that Dr. C noted: Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. Like I said, peoples experiences are all different. Contact Editor. All severe aortic stenosis patients who are experiencing symptoms should ask for a TAVR evaluation. A cadaver if valve is then used to replace his pulmonary valve. Many thanks. The best source of recommendations about safety of various forms of exercise will come from your doctor(s) who are familiar with all the particulars of your circumstance. I have had scans and echos for as long as I can remember and have never been on medication nor has this condition stopped me from doing anything I have wanted. 2; Hi all, Given my age and activity level, do you think it would be beneficial, or even prudent, to explore a valve repair surgery as you described above? I have been feeling better than before the surgery and I feel with better condition on the trails. Beta blockers are frequently prescribed in the circumstance you describe, but in truth we dont know if they will be effective in delaying surgery for any given patient.
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